Improving systems of care and services for people with diabetes and their families in rural and remote Australia (NT, FNQ & Kimberley)

NT Diabetes in Pregnancy Clinical Register

All women with diabetes in pregnancy, who are over the age of 16 years and who give birth in the NT are included in the NT DIP Clinical Register. The NT DIP Clinical Register uses pre-existing and routinely collected data from primary health care services and hospitals. The NT DIP Clinical Register is supported by the NT Department of Health and the Aboriginal Medical Services Association of the NT (AMSANT).

Information from the NT DIP Clinical Register is used for health services planning, continuous quality improvement and to support clinical recalls of women who may benefit from primary care follow up after a pregnancy with diabetes.

Opt-out/Removal from the register

Women can request to have their information removed from the register at any time without any consequences to their health care. This can be done by accessing the web-based form here or paper form below.

Data Custodianship and Use

The data remains the property of the relevant partner organisation/health care provider. Biannual reports of aggregated (NT-wide) de-identified data are prepared by the NT & FNQ DIP Partnership Steering Committee for the purposes of quality assurance and are circulated to all relevant health care providers in their jurisdictions. Clinical audits in the NT, using NT DIP Clinical Register information may be undertaken following an application for consideration by the NT & FNQ DIP Steering Committee.

 

Project Forms, Policies and Guidelines:

Contact

For any queries regarding the NT & FNQ DIP Clinical Registers, please contact ntdippartnership@menzies.edu.au

To opt-out/remove details from the NT DIP Clinical Register, please return complete the web form listed above, or complete the paper form listed above and email to: DIPClinicalRegister.THS@nt.gov.au. Alternatively, you may email the same address with the woman’s first and last name, date of birth and address to request to be removed/opt-out from the register.

If you have any concerns about the ethical conduct of this project, please contact the NT Human Research Ethics Committee on (08) 8946 8687 or NTHREC@menzies.edu.au.